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Follicular Lymphoma Advocacy and Support Groups

Advocacy and Support Groups for Relapsed/Refractory (r/r) Follicular Lymphoma (FL)

How advocacy and support groups can help you

Patient advocacy and support groups aid patients, their families, and caregivers in navigating the complex treatment landscape, helping to ensure that they receive timely and appropriate care, education, and financial assistance, if necessary. Novartis provides KYMRIAH CARES™, a support program designed to help you access your KYMRIAH. 

Image shows Trish, an actual KYMRIAH® patient standing in the forest along with a senior citizen man who is taking his shoulder.
Support and resources for family and friends

Support and advocacy groups can help loved ones cope with the stress and emotional challenges of follicular lymphoma. These groups offer a safe space to connect with others, share experiences, and provide practical advice and coping strategies. Accessing these resources can help prioritize the mental and emotional well-being of caregivers. You can also access Downloadable Resources or get in touch with KYMRIAH CARES™ for patient support.


General support

American Cancer Society

The American Cancer Society (ACS) is committed to attacking cancer from every angle, from launching breakthrough research to empowering patients with resources, information, and support.

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CancerCare

CancerCare provides counseling, support groups, education, and financial assistance to cancer patients and their caregivers.

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Cancer Research Institute

Cancer Research Institute (CRI) is a nonprofit organization dedicated exclusively to advancing immunotherapy (a type of cancer treatment that helps your immune system fight cancer) to treat, control, and cure all cancers.

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Cancer Support Community (CSC)

The largest professionally led nonprofit network of cancer support worldwide, the CSC builds community and offers resources to those impacted by cancer.

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Friends of Cancer Research

Friends of Cancer Research (FOCR) drives collaboration among health care stakeholders to deliver life-saving treatments to cancer patients.

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Leukemia & Lymphoma Society (LLS)

The mission of LLS is to cure blood cancers and improve the quality of life of patients and their families.

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Lymphoma Research Foundation

Lymphoma Research Foundation (LRF) is the nation’s largest nonprofit organization devoted exclusively to funding lymphoma research and serving those impacted by this blood cancer.

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Patient Advocate Foundation (PAF)

PAF provides case management services and interventions that reduce health care-related financial crises for Americans diagnosed with chronic, life-threatening, and debilitating illnesses. In addition, the PAF National Financial Resource Directory ↗ helps insured and uninsured patients connect with even more resources that can help.

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Stupid Cancer

Stupid Cancer is a US-based charity that supports young adults with cancer worldwide by providing information, online community forums, and regional support groups, as well as large-scale summits and meet-ups throughout the year.

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The organizations and websites listed on this page are maintained by third parties over whom Novartis Pharmaceuticals Corporation has no control. As such, Novartis Pharmaceuticals Corporation makes no representation as to the accuracy or any other aspect of the information supplied by these organizations or contained on these websites. The organizations listed on this page do not specifically endorse the use of KYMRIAH® (tisagenlecleucel).

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KYMRIAH CAREGIVERS

If you are caring for a friend or family member with follicular lymphoma:

 

  • Know that it is okay to ask for help. Establish a support network of family, friends, and/or religious or spiritual groups
  • Consider counseling services for yourself and for those close to you
  • Use a binder to help organize appointment reminders, business cards, and emergency telephone numbers
  • Keep in mind that no 2 cancer experiences are the same and that patients, families, and caregivers may cope with follicular lymphoma differently
  • Remember to care for your own health and wellness. When you are your best self, you are the best caregiver you can be. Remember to take the time for self-care and do what is important to you

To find more tailored information and support, visit our dedicated Caregiver resources page.