Advocacy & Support Groups

Relapsed/Refractory (r/r) B-cell Acute Lymphoblastic Leukemia (ALL)

Support and resources for family and friends

A cancer treatment journey can take a toll on the whole family. It’s important to seek care for not only physical health, but also mental and emotional well-being. There are support groups, as well as Novartis resources, to help you at each step of your treatment journey. Go to Support Resources for KYMRIAH to see what other support is available.

Image of Tori, actual KYMRIAH CAR-T Cell patient

If you are caring for a child with cancer:

Know that it is okay to ask for help. Establish a support network of family, friends, and/or religious or spiritual groups
Consider counseling services for yourself and for those close to you
Keep a notebook of important information such as appointments, business cards, and emergency numbers
Maintain a schedule to help bring a sense of normalcy to your family setting with planned times for meals, homework, or play
Keep in mind that no 2 cancer experiences are the same and that patients, families, and caregivers may cope with cancer differently
Remember to care for your own health and wellness. Take time to exercise, meet a friend for coffee, or see a movie

General support

Alex’s Lemonade Stand

Alex's Lemonade Stand Foundation aims to change the lives of children with cancer by funding impactful research, raising awareness, and supporting families.

Alliance for Childhood Cancer (ACC)

The ACC unites national patient advocacy groups and medical/scientific organizations in an effort to advance research and policies that affect children with cancer.

American Cancer Society

The American Cancer Society is committed to attacking cancer from every angle, from launching breakthrough research to empowering patients with resources, information, and support.

B+ Foundation

B+ Foundation focuses on delivering financial assistance, cancer research, awareness, and positivity.

CancerCare

CancerCare provides counseling, support groups, education, and financial assistance to cancer patients and their caregivers.

Cancer Support Community (CSC)

The largest professionally led nonprofit network of cancer support worldwide, the CSC builds community and offers resources to those impacted by cancer.

Children's Cancer Cause (CCC)

The CCC works to expand resources and access to better treatments for pediatric patients and their families.

Coalition Against Childhood Cancer (CAC2)

CAC2 works toward a world without childhood cancers by promoting coordinated action, information exchange, education and learning, and broad-based collaboration.

Emily Whitehead Foundation

Initially founded to support a pediatric cancer patient, this foundation's mission is to raise awareness and funding for innovative childhood cancer treatments.

Friends of Cancer Research

Friends of Cancer Research drives collaboration among health care stakeholders to deliver life-saving treatments to cancer patients.

Leukemia Research Foundation

The Leukemia Research Foundation provides research grants to new investigators, as well as financial assistance and support programs to patients and their families.

Leukemia & Lymphoma Society (LLS)

LLS's mission is to cure blood cancers and improve the quality of life of patients and their families.

Patient Advocate Foundation (PAF)

PAF provides case management services and interventions that reduce health care-related financial crises for Americans diagnosed with chronic, life-threatening, and debilitating illnesses. In addition, PAF’s National Financial Resource Directory ↗ helps insured and uninsured patients connect with even more resources that can help.

St. Baldrick’s Foundation

St. Baldrick's helps raise awareness and funding around childhood cancers.

Stupid Cancer

Stupid Cancer is a US-based charity that supports young adults with cancer worldwide by providing information, online community forums, and regional support groups, as well as large-scale summits and meet-ups throughout the year.

The organizations and websites listed on this page are maintained by third parties over whom Novartis Pharmaceuticals Corporation has no control. As such, Novartis Pharmaceuticals Corporation makes no representation as to the accuracy or any other aspect of the information supplied by these organizations or contained in these websites. The organizations listed on this page do not specifically endorse the use of KYMRIAH^® (tisagenlecleucel).

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